New Stanton VFD hosts fundraiser for Johnsons
Event sponsors and auction items are being collected by The Friends of the Johnson Family as they plan the second annual Benefit for the Johnson Angels, a dinner and auction to raise funds for the children of Ryan and Addison Johnson of Hempfield.
The young couple has four children with ataxia-telangiectasia (A-T), a rare, incurable, devastating, progressive disease.
The fundraiser will be held at the New Stanton Volunteer Fire Hall at 108 S. Main St. in the borough from 6 to 10 p.m. on April 13.
Tickets are $10 before the dinner and $15 at the door.
To purchase tickets, call Addison Johnson at 724-422-7744 or email firstname.lastname@example.org
Ticket purchases and donations for the Benefit for the Johnson Angels should be made out to the Johnson Angels at First Commonwealth Bank, Mail Teller, P.O. Box 400, Indiana, PA 15701.
Proceeds from the fundraiser will help the Johnsons build a fund to purchase a $25,000 wheelchair platform for their stairs. Half of the funds raised will be donated to the A-T Children's Project for research into the cause and cure for the disease.
Guests will enjoy a spaghetti dinner while participating in raffles and live auctions.
Entertainment for the evening features local band Hamilton Avenue, who will sing "Hard Life," written by Joe Kindregan, an A-T victim. The song was made famous by country singer Brad Paisley.
Fans can follow the developments of the event on Facebook by clicking here.
A-T is a progressive, degenerative disease that attacks many systems of the body.
The four Johnson children - 4-year-old Ayden and his 2-year-old triplet sisters - Alivia, Payton and Riley - will probably die by their teens or early 20s. Most A-T children depend on wheelchairs by age 10 because they cannot control their muscles.
A-T attacks the cerebellum, the part of the brain that controls muscles. The Johnson children are already having difficulty standing, walking and holding their heads up.
The Johnson family is one of two families known in the world with four children suffering from the disorder.
Show commenting policy
TribLive commenting policy
You are solely responsible for your comments and by using TribLive.com you agree to our Terms of Service.
We moderate comments. Our goal is to provide substantive commentary for a general readership. By screening submissions, we provide a space where readers can share intelligent and informed commentary that enhances the quality of our news and information.
While most comments will be posted if they are on-topic and not abusive, moderating decisions are subjective. We will make them as carefully and consistently as we can. Because of the volume of reader comments, we cannot review individual moderation decisions with readers.
We value thoughtful comments representing a range of views that make their point quickly and politely. We make an effort to protect discussions from repeated comments either by the same reader or different readers.
We follow the same standards for taste as the daily newspaper. A few things we won't tolerate: personal attacks, obscenity, vulgarity, profanity (including expletives and letters followed by dashes), commercial promotion, impersonations, incoherence, proselytizing and SHOUTING. Don't include URLs to Web sites.
We do not edit comments. They are either approved or deleted. We reserve the right to edit a comment that is quoted or excerpted in an article. In this case, we may fix spelling and punctuation.
We welcome strong opinions and criticism of our work, but we don't want comments to become bogged down with discussions of our policies and we will moderate accordingly.
We appreciate it when readers and people quoted in articles or blog posts point out errors of fact or emphasis and will investigate all assertions. But these suggestions should be sent via e-mail. To avoid distracting other readers, we won't publish comments that suggest a correction. Instead, corrections will be made in a blog post or in an article.