Monroeville family builds team for upcoming walkathon
Amanda Butler knew something was wrong when her son didn't bounce back from the flu several years ago.
“It took a long time for him to recover,” said Butler, 36, of Monroeville about her son, Layton Butler, now 15.
The Butlers were living near Macon, Georgia, when Layton got sick in 2008. After two years of testing, the youngster was diagnosed with mitochondrial disease.
The news got even worse for the family. During attempts to diagnose Layton, Amanda Butler, who also had become ill, underwent a muscle biopsy that determined she has the gene for mitochondrial disease. Both mother and son in 2010 were diagnosed with mitochondrial disease.
Daughter Katy Butler, 18, also became ill after her graduation a year ago and was diagnosed with the disease as well.
Mitochondrial DNA can only be passed on from the mother, according to the United Mitochondrial Disease Foundation (UMDF), based in Plum.
Amanda Butler said she and her children suffer with constant fatigue, muscle pain and gastrointestinal problems, among other symptoms.
The family last year decided to move to the Pittsburgh area after Dr. Amy Goldstein, a pediatric neurologist at Children's Hospital of Pittsburgh, began treating Layton Butler. Goldstein also is a member of the UMDF.
Amanda Butler said she and her children continue to have health problems resulting from the disease.
“The battle is getting doctors to understand it,” Amanda Butler said.
With an eye toward getting more attention to the disease and funding for a cure, Amanda Butler and her family members are putting together a team for the United Mitochondrial Disease Foundation Energy For Life Walkathon on June 1.
“We hope to have at least 15 to 20 people in the race,” Amanda Butler said.
The family's team is “BUTLER'S pitching 4 a MITO cure.” Those interested in walking can register at www.energyforlifewalk.org/pittsburgh.
“We are huge baseball fans,” Butler said.
There is no cost to participate in the walk. Donations also can be made by accessing the website. Amanda Butler said all proceeds go to the UMDF.
Butler said those interested in walking for the Butlers' team also can contact her at 412-374-7250 or 412-689-2950.
Karen Zapf is a staff writer for Trib Total Media. She can be reached at 412-856-7400, ext. 8753, or email@example.com.
Show commenting policy
TribLive commenting policy
You are solely responsible for your comments and by using TribLive.com you agree to our Terms of Service.
We moderate comments. Our goal is to provide substantive commentary for a general readership. By screening submissions, we provide a space where readers can share intelligent and informed commentary that enhances the quality of our news and information.
While most comments will be posted if they are on-topic and not abusive, moderating decisions are subjective. We will make them as carefully and consistently as we can. Because of the volume of reader comments, we cannot review individual moderation decisions with readers.
We value thoughtful comments representing a range of views that make their point quickly and politely. We make an effort to protect discussions from repeated comments either by the same reader or different readers.
We follow the same standards for taste as the daily newspaper. A few things we won't tolerate: personal attacks, obscenity, vulgarity, profanity (including expletives and letters followed by dashes), commercial promotion, impersonations, incoherence, proselytizing and SHOUTING. Don't include URLs to Web sites.
We do not edit comments. They are either approved or deleted. We reserve the right to edit a comment that is quoted or excerpted in an article. In this case, we may fix spelling and punctuation.
We welcome strong opinions and criticism of our work, but we don't want comments to become bogged down with discussions of our policies and we will moderate accordingly.
We appreciate it when readers and people quoted in articles or blog posts point out errors of fact or emphasis and will investigate all assertions. But these suggestions should be sent via e-mail. To avoid distracting other readers, we won't publish comments that suggest a correction. Instead, corrections will be made in a blog post or in an article.
- Pirates pound Padres for 7th consecutive victory
- Former Ford City superintendent charged with killing family member in Texas
- Steel Valley keeps taxes flat in 2015-16 budget
- Steelers’ defense unfazed by noise, believes in potential
- Rural Valley celebration to mark fire department’s 100th year
- Apollo-Ridge students connect world, science
- SummerFest taking shape for 2nd year in Ford City
- UPMC McKeesport’s stroke team recognized
- LaBar: Future of Rusev in WWE critical
- Penguins notebook: After reinterpreting rule, draft pick sought for Bylsma’s hiring
- Overhaul possible for West Mifflin’s Century III Mall