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ACA & Down syndrome

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Letter to the Editor
Friday, Nov. 15, 2013, 8:57 p.m.
 

One of the provisions in the Affordable Care Act championed by the disability community is coverage for pre-existing conditions. This is a positive mandate, and many advocates have fought to ensure individuals with disabilities are fully included in our society.

I am the father of an amazing daughter, Chloe, who has Down syndrome, and I advocate for inclusion and acceptance.

After Chloe's birth, I became aware of the 90-percent-plus abortion rate for children diagnosed prenatally with Down syndrome. The ACA provides funding for abortion.

The reality is that less than 10 percent of children who survive from a prenatal to a postnatal pre-existing Down syndrome condition can access health-care coverage. Why should the disability community be excited about coverage funding the instrument used to terminate 90 percent of individuals diagnosed with a prenatal pre-existing condition?

Rapid advances in genetic testing will lead to more prenatal pre-existing conditions being diagnosed. Will our “inclusive, tolerant” culture allow these individuals to be targeted and eliminated by health-care coverage that supposedly was crafted to protect them?

Kurt Kondrich

Upper St. Clair

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